About the Norfolk Arthritis Register
A short film about NOAR
Thank you to Ben Sabu who supported the video editing.
Research aims and objectives
NOAR is an ongoing study. The data collected is used in research aimed to address many clinically and genetically relevant questions as part of a large programme of research within both the Centre for Epidemiology Versus Arthritis and the Centre for Genetics and Genomics Versus Arthritis.
Who is taking part?
You are eligible to take part in the NOAR study if you are:-
- Over the age of 16 years
- Have been diagnosed (within the last 2 years) with an inflammatory arthritis
- Resident in Norfolk at the time your symptoms started
- Willing to give informed consent (this is an ongoing agreement by a person to participate in research when he/she is fully aware of what participation is involved).
- Willing to complete a health questionnaire
- Willing to provide a blood sample (this is optional)
Why Norfolk?
Once recruited to the register, many participants are followed for several years. There is a low rate of people moving out of the county, therefore making Norfolk an ideal place to conduct longitudinal studies such as the Norfolk Arthritis Register.
The majority of NOAR participants, if they need hospital care, are seen at the Norfolk and Norwich University Hospital.
The local General Practitioners (GP’s) have been very supportive of the Norfolk Arthritis Register since it started in 1989.
NOAR recruits from a population of around 500,000 (living in both urban and rural areas) which is a large enough population to give us meaningful information about Inflammatory Polyarthritis.
What does the study involve?
Participation in the study is entirely voluntary and you are free to change your mind about taking part at any time.
To take part in the NOAR study you will need to complete an online consent form, complete a questionnaire and provide permission for the research team to look at your medical records. We will obtain information from your medical records such as diagnosis, latest blood test results and hospital in-patient information.
The study's participant information sheet is designed to provide you with key information and will hopefully answer most of your questions about what the study involves. If you have any questions please get in touch.
Participant Information Sheet V8.1 - 24/04/2022
Information about how we use the data we collect from you and your medical records can be found here.
If you are interested in participating in NOAR please get in touch.